Dazzling Mirage – a film by Tunde Kelani – Share your Sickle Cell Stories in the Comments

By admin on January 16, 2013

Have you read this book? Written by Olayinka Abimbola Egbokhare, the story is based on sufferers of the sickle cell anaemia and the myths about this health condition. The story is about a young lady who has to strive against all odds of physical pains and traumas which she experienced on her way to fulfilling her destiny.

Our latest project is an adaptation of this book and pre production has already started on the film.

Do you have any stories about sickle cell or do you have any experiences. In not more than 100 words, post your story below.

Best
TK

  • Monsurat Akinyele

    I am proud to call myself a sickle cell warrior. At 24 and studying Pharmacy, I’ve taken it upon myself to be medically vigilant about my health and well being. Though, I live alone in a university/college community with no family or relatives around, I am strong and an independent young lady. I educate my friends and strangers on sickle cell anemia and have no shame in disclosing my health ailment. I have my good and bad days like everyone else; however, when the sun shines, I radiate with massive positive energy.

    • mainframemovies

      Hello Monsurat, it is lovely to hear your story and to see the great positive attitude you have. Keep it up and God bless!

  • Kola Agbede

    In few days it will be ten years of marriage to my spouse who is diagnosed with sickle cell trait.

    I was aware of her conditions prior to marriage but naive about care. But today we have two children and expecting the third.

    No one gave my spouse any chance of survival in life. My smart strategy was not to disclose her condition to my family prior to marriage. A situation that gave rise to much challenges.

    It is interesting to note that our first child was born in Nigeria with minimal health support, the second was born in Plymouth in England; with close supervision by medics. Both experience underscore the importance of care for this ailment.

    My spouse experience frequent and sporadic crisis while she was living in Nigeria; however, in our decade of living in England, I believe she only had a couple of crisis.

    The secret to her health is care, and our mantra is prevention. An SS must not be allowed to stress herself through physical labor and must be adequately hydrated. Quality food is essential and key to survival.

    In crisis, especially for those living in non black society (Western Countries); it is vital to note when medic is not adequately knowledgeable in care. As I found out in a remote village in Wales. I had to advice medic to administer fluid and pain killer to my spouse, an action that saved her life.

    Her condition compel me to seek knowledge of care, and prevention.

    My spouse leads a normal life and I have to sometimes remind her of her condition, in fact we now reside in Canada with freezing temperature sometimes at -40 degrees but she coped well.

    I then observed that your film should reflect that: Nigeria has adequate knowledge and information of ailment, but lack the will to care and the information do not produce positive impact.

    The principles of duty of care; culture and information and knowledge management greatly improve the quality of life for my spouse, in a foreign land. To the extent that we don’t even remember the ailment.

    I sincerely hope the society will be captivated by your project and pay the right attention to such an important genetic concern.

    – solomon.agbede@live.com

    • mainframemovies

      Hi Kola, I wish your family many more happy years in good health. Your comments have been noted.

      Regards
      TK

  • Otunba Abel Akinseye

    hmm…

    I am encouraged here as always. I strongly believe that I can support my child that is recently diagnosed to be having sickle cell (She is 9 months). I have made up my mind, with the help of God to support her with all necessary care.

    Praying that all things work out. I strongly believe that having sickle cells is not the end of reality and that it can be managed based on availability of necessary supports. I get encouraged reading success stories like this…